I think one of the most incredible things that God does in my life is to remind me that in order find him, I must be willing to be led. The led heart is the heart that will touch things that are of God. My opening post is about dying to self enough to allow ones heart to be led. The led heart is opened to much love, along with much of what is disturbing to many of us about the day to day reality of life on earth. Make no mistake, I plan on working on being a led heart, more and more and more….
I have learned so much since Ian came home, and what is special to me about that fact is that Ari was the foundation that God built for me to ever begin to believe that I could be a mom to two little guys with pervasive, lifelong, intensive special needs. Being a mom is a gift, and a sometimes gut wrenching experience. A couple of weeks ago, my little man Ari fell down the stairs in our home. I am still horrified at the picture of him crying, his little body just sprawled out on the landing, it was gut wrenching. He is okay, but to give you an idea of how painful that fall, and scary it was for Ari, he ended up getting a rug burn bad enough to take the skin off up UNDER his nose on the upper lip. Just imagine how he had to fall to get that, horrible I tell you. We have no idea how he fell. He has been so consistently good on the stairs…this happened right as we were preparing to take the kids for their holiday photos. They still turned out delicious though, don’t you think? I did some photo magic to take the burn mark out of the first pic.
The day after Ari's fall my cell phone rang in the middle of the day from Ari’s school (immediate panic set in as they never call), it was Ari’s facilitator Shannon. Ari attends school with his “typically developing” peers, with the help of a 4.5 hour a day 1:2 aide. On this day, she told me something amazing about our Ari. She told me that at about 12 noon EST, he became a swimmer! Say what Ms. Shannon? His swim teacher’s first name is Faith. Ms. Faith has worked one on one with Ari since August, once a week in the indoor pool at Ari’s school. That day, my 5 year old son with pervasive, lifelong, and intensive special needs, my little man diagnosed with Autism, that day after his terrible fall, he JUMPED off of the RACING PLATFORM, into the deep end, popped back up, and swam unassisted to the edge of the pool and hung on. He did it with a little floppy body that was bruised and sore from his fall the day before. Can you say TROOPER? This kid is AMAZING. I am so humbled to know him.
As I hugged Ari and praised him when I went to his preschool classroom later on the day of swimming miracle, for their Thanksgiving play and “Kosher Feast,” I was dumbstruck by the juxtaposition of Ari’s miracle in the pool and his disaster on the steps. We moms of kids with special needs, I think we can all say that we stay on high “alert” nearly 99.9 percent of the hours in our days. That position is exhausting, mentally and often physically. Ari has been doing SO WELL on the stairs. Not so much on curbs, or in the house at large, but the steps have been FINE.
With so much to concentrate on, for each boy (Ian coincidentally prefers to go down the steps on his bottom at break neck speed), I forgot about the stairs, to me, it had been MASTERED. Mastery is a funny word though, it comes and goes, just like thinking you “know” God and you “trust” in his promises. If I am honest with myself, and if I am looking for those things that are roadblocks to becoming a led heart – it is the coming and going of my faith. Never lost completely, but for certain there are ebbs and flows. These boys are such sprited reminders that my faith MUST rest securely from day to day in my heart, which I so much desire to be purely led.
Later in that week, I got a rare chance to run outside before some very severe weather hit Atlanta. I attempted to do 5 miles. This was day two of kind of trying to get back to running, since I set a goal about a month ago to run those same mountain 5 miles with rolling hills and mile long inclines, in 41 min. Not because I’m turning 41 in May or anything. I just thought “41/41” would be a cool slogan I could use to self-motivate. After my run however, I may be in trouble. Not saying how “fast” I ran them miles (if I can even use the word fast)…just saying, I have my work beautifully cut out for me! Stay tuned to the RUNNING page for more 41/41 updates.
At a moment of just plain stopping running calculated rest, I removed my headphones, turned the music I was listening to off, and listened to the earth. The sound of the wind, the leaves, the smell in the air of a rain storm that was near, and even the whizzing of a biker passing me…it was all so PEACEFUL, that I cried to God in thanks for the blessing of that moment. Physically, I was a wreck and couldn’t run another step.
Spiritually, my heart was being led to a period on the mountain when I cried out loud for all the blessings that surrounded me. I heard myself. When is the last time you simply stood outside, with no one else around, and listened to the earth? Asking myself, I cannot tell you, I do not recall, has it been YEARS? Perhaps. God leads us to what we need, and often we will not see the truth of that statement until the moment has passed us. I’m going to start paying better attention.
Since you last saw us, we were in the throws of adjustment to several things: another child (1 is WAY different than 2! Don’t let anyone fool you!), a change in Ari’s entire routine (new school, new teachers, new schedule, new brother), the emotional and financial recovery from an intensive adoption “rescue” if you will, and just the restarting of our lives after Ian landed on August 24th.
Today, we are still in all that stuff above, and I think we will be for some time. What has changed is that we are starting to be able to etch out a microcosm of consistency with our lives and the boys. There is SO much Craig and I would like to do creatively and with the kids, we hope to get to a place soon where it all clicks and we can all feel at home and at peace (we have peace, all the time no matter our circumstances as a gift from above, so the peace I mean is more like the yelling and stomping and wayward hand waving of one certain Russian General that has infiltrated our ranks!).
I’m no shrink, but I think we are wading through it all “okay”. I truly do not have a thing to complain about, especially if I think back to all of the moments of PEACE and HOPE that come from being a led heart. Putting those moments together to make a complete day is where I’m heading. I’m excited to go there.
Ian is doing okay, which is a loaded word because it includes the times he's doing fantastic and the times he's still hurting from the atrocity of his upbringing before we knew him. YES, I said ATROCITY! and it is. I DID NOT know what a life spent in an orphanage could do to a child. Now I know, and Ian's "effects" I think are light compared to some of the truly sickening places these kids get pulled from. WE (i.e. us humans, are allowing some truly awful things to happen to children, and I pray for an end to it all one day soon. You know, you can MAKE a BABY go insane by leaving him lay all day for years....) Someone once told me they respected my blog because I kept it real, and I intend to continue that trend…sugar (and sugar coating) is bad for your health anyway! So, here are the truths about Ian and our adoption and our adjustment so far:
- This is great. These kids have changed us. We are better because and for them. Without them, I do not want to know where I would be. We have a real man at the helm of our little family too, and he keeps it all together. He works when his is sick, and has not had a day off in over a year. I am surrounded by Saints and Angels (and a Vampire, a pink Butterfly Fairy, and an overworked Firefighter!). It IS a beautiful life.
- Ian can count to 5, say HI and BYE in English, knows who we are, learned how to cut (assisted), can kind of draw a circle, is starting to listen better, understands MOST English, has stylish new glasses, loves to eat cheese and anything sweet, comes to us for hugs and is learning to give kisses sans the head-butting upon approach! he's a great mom and dad's helper, and he is tolerating Ari's massive bear hugs and 3-4 times and hour sloppy kisses:) He shows concern for all of us, and he's learning about the world, and this list goes on....
- This is hard. Mainly because we are tired. We are doing this just the two of us, there is no family here and to be frank, when you have kids with special needs, you cannot just get anyone to come in and break you. If you do, you could risk the unlearning of so much that you spent time working on. God has blessed us. We have two wonderful high school girls that come each week to help us. The boys are still in 100 percent supervision at all times mode and Ian is always such. It is costly but we are realists and hey, mom and dad have to have a few hours to do housework and brush our own teeth.
- Ian refuses to get on the bus to school by throwing massive tantrums, he still hits others, he is very defiant and generally naughty (naughty in the 5 year old boy sense but turned up a few notches), he has less than zero impulse control, breaks most anything he gets his hands on, can have a very ugly attitude, spits or makes some lewd or rude hand gesture when he feels he's being controlled, and this list kinda keeps going on too....
- Ari loves Ian. He says, all the time, "I love my brother very much." They are becoming peas in a pod. When Ian learns to talk, I am sure the relationship will get better and better.
- Ian loves Ari. Whenever Ari cries, Ian is upset too. He will come to comfort him too, with a hug, a blown kiss, and a pat on the back. Pouring water over his head during bath time is also another favorite expression of play from Ian to Ari. Ari loves it BTW. Oh, and a "hot shower" is Ian's new favorite thing that he never experienced before, he absolutely squeals, screams, dances and laughs in delight in the shower.
- We see so much progress from Ian, he is a VERY (understatement) SMART boy. His problem solving processes are incredible. Part of the reason he breaks stuff is that wants to KNOW how it was put together, lay out the pieces, examine them and
put them back togetherthen move on to the next good looking multi piece item to farm for parts. While he is not yet playing with toys in the way they are intended, he is a creative beast. His current love is stacking things.
- This is humbling. No explanation needed.
- This is a gift to us of epic proportions.
- God sustains us though it all.
- We are practicing, everyday, being led.
LOVE LOVE LOVE SEEING ALL THE PICTURES OF THOSE BOYS!! Oh My Goodness Ian looks GOOD!!
ReplyDeleteYEAH! I was so happy to see this tonight!
ReplyDeleteI'm just amazed that Anya and Ian were in the same group. Anya loves touch. Not as much from me, sadly, but from her sister and Dad. I attribute it to the fact that she had so many women come and go in her life, it's harder to allow herself to bond with me. It's just going to take time to reprogram these kids, you're right.
Never thought of the hair being a factor in how much touch they receive. But it makes sense.
And what you said about Ian's race being such an issue there makes me so sad. Sounds like they are still back in the 1950's in more ways than one.
Thinking of you this holiday season! Love ya, and thanks for listing me as one of your BFF's. :) I'm honored!
So glad to hear from you again. God reminds me often to pray for you. I'm glad that you can find time to share even in this intensive phase. Thank you for sharing openly about the hard things as well as the good ones. May God give you physical and emotional strength to live out your calling, and the spiritual strength to keep clinging in faith to your source.
ReplyDeleteLoved the update! Thank you so much!
ReplyDeleteBy the way, that is not Verity. That is Katie, Verity is their other DS blessing. If you look on the right hand side of her blog it shows which one Verity is. We love on Katie (via prayers) all the time!
Thank you again for the updates!
I'm so happy to see this update. I've been checking and praying that all is well, It sounds like you are making progress and becoming a wonderful family.
ReplyDeleteLove the new blog!!! I have been missing you and it's so nice to be able to follow again!
ReplyDeleteAdri
So happy to see you blogging again and for the updates on both of the boys! Makes my heart smile! :-)
ReplyDeleteOne of my big concerns when I came across Ian on RR was him being treated EVEN worse because of his skin color. I remember relaying that to you when I first emailed you. I am so glad to see & read that the long term effects of that are slowly but surely being wiped away. Although I almost expected it, I was still stunned to read that "negroid skin" was listed as a disorder.
Love seeing how the bond between the brothers is growing! So sweet :-)
Thanks for sharing Gretchen! The new blog looks great too, btw!